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Monday, December 29, 2008

Knowing I'm not the only one suffering with the pain of CRPS/RSD is like a doubled edged sword for me.



From the desk of Carol


A
cross America, there is an estimated 76 million Americans suffering with some type of pain!

76 Million Americans - Just think, if we all could/would join together, and help to bring awareness to this cause.


*Think about it-What can YOU do?

Knowing I'm not the only one suffering with the pain of CRPS/RSD is like a doubled edged sword for me.

What I mean is, I take great comfort in knowing that I'm not the only one with CRPS/RSD knowing that I can pick up the phone or send an email to others dealing with the same pain I do, and I know they truly understand when I talk about the burning pain that comes along with CRPS.
What really saddens me, is the same thing, knowing that their are so many of us that live with this pain.


Why do we only hear about those suffering with cancer, HIV/AIDS, Alzheimer disease, etc..., we see it daily in the commercials for TV, the magazines we read, and the radio station we listen too. But why don't we hear more about RSD/CRPS? Were starting to hear more about Fibromyalgia, and we also see the commercials for those with back pain, and some different types of arthritis.

From the web page For Grace

We read that there's an estimated 1.5 and 6 million Americans suffering with RSD/CRPS. This may not seem like a lot, to some, at first but when you continue to read, it says that it's more than those with breast cancer, HIV/AIDS and multiple sclerosis combined; yet to date RSD remains virtually unheard of.

When I read that, or even when I think about it, I have to ask myself, why and how...and what can be done so that this changes, and changes soon!

I would love to read your thoughts on this, and why you think CRPS/RSD is virtually unheard of?


Just some of my crazy random thoughts!

Carol Rains






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