From the desk of Carol
Across America, there is an estimated 76 million Americans suffering with some type of pain!
76 Million Americans - Just think, if we all could/would join together, and help to bring awareness to this cause.
*Think about it-What can YOU do?
Knowing I'm not the only one suffering with the pain of CRPS/RSD is like a doubled edged sword for me.
What I mean is, I take great comfort in knowing that I'm not the only one with CRPS/RSD knowing that I can pick up the phone or send an email to others dealing with the same pain I do, and I know they truly understand when I talk about the burning pain that comes along with CRPS.
What really saddens me, is the same thing, knowing that their are so many of us that live with this pain.
Why do we only hear about those suffering with cancer, HIV/AIDS, Alzheimer disease, etc..., we see it daily in the commercials for TV, the magazines we read, and the radio station we listen too. But why don't we hear more about RSD/CRPS? Were starting to hear more about Fibromyalgia, and we also see the commercials for those with back pain, and some different types of arthritis.
From the web page For Grace
We read that there's an estimated 1.5 and 6 million Americans suffering with RSD/CRPS. This may not seem like a lot, to some, at first but when you continue to read, it says that it's more than those with breast cancer, HIV/AIDS and multiple sclerosis combined; yet to date RSD remains virtually unheard of.
When I read that, or even when I think about it, I have to ask myself, why and how...and what can be done so that this changes, and changes soon!
I would love to read your thoughts on this, and why you think CRPS/RSD is virtually unheard of?
Just some of my crazy random thoughts!
Carol Rains
This website is for information purpose only.
Technorati Tags: RSD/CRPS; Chronic Pain
1 comment:
Hi Carol,
Why is RSD/CRPS virtually unheard of??
Oh how I have asked myself that question time and time again. Now, I am of the mindset of changing the answer from "I don't get it" to "Oh look, there's our RSD commercial again!" And I don't plan on stopping until it is a goal accomplished!!
Hopefully 2009 will allow us RSDers to witness the first commercial. We have to find something that works well for a major percentage of us so they can attach some medicine along with it! If I have my way, it will be just a commercial of awareness, informing everyone that 'ANYBODY' can get this and we need to find a cure! Like they do with so many other things.
Thanks for your honesty and asking for our thoughts.
Keep Smiling, Stay Strong, Have Faith!
~Blessings~
Coach Marla
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