Over the last few days I've been thinking about all of the movements across the United States. There's M.A.D.D, Susan G. Komen 3-Day for the Cure,and more recent there is the Tea Party movement, and so many more grass roots are starting up all over America. These people,are no different than you or I, they are people with a desire to help make change, people willing to research, write letters, make phone calls, set up retreats, and conferences across the United States to educate their people and anyone else willing to listen to their cause. I've seen a lot of your posts on facebook, my space, my in box, other chronic pain web pages all have our stories posted on them telling anyone willing to take the time, of the horrible pain we each live with, how unfair the majority of us with chronic pain are treated by the medical professionals, friends, co-workers, and even our own family members.
Were no different than any of these/those organizations/movements, we just need to organize. We don't need to re-invite the wheel, we may need to fix a few spokes here and there! But its nothing we cannot handle and or do TOGETHER!
In the Face of Pain
provides us with a series of tools to advocate for people in pain. You can learn the basics of how to share messages about the rights of people in pain through your community, your local media outlets, your elected officials and your professional organizations.
You will also have access to current data and statistics about conditions or population-specific pain that can be used to support your advocacy efforts. Lastly, you have the capability to build a personalized advocacy plan, tailored to your specific interests.
How to Advocate Through:
Legislative Bodies
The Media
Community Organizations
Professional Organizations
Research
Access to Optimal and Affordable Care
Other Helpful Resources
Build Your Own Advocacy Plan
Research Data, Statistics and Resources
Pain Management News
There are 76 Million Americans that suffer with some form of chronic pain. What about the one's who are told everyone has a little pain, no pain no gain, its all in your head, and the other excuses we've all heard.
I saw this written not to long ago,
"If not us, then who? If not now, then when?
The time is now, will we be heard? It's up too us....
1 comment:
I too suffer from chronic pain. In my case, the cause isn't completely understood. I was misdiagnosed with CRPS and syringomyelia. I am very grateful that these were misdiagnoses because it's better to not know than to be faced--as you are--with the worst. My hats off to you and to anyone who can survive as long as you have.
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